A Euro Dynamics Study?

No. No.  Urodynamics.  Uro not Euro.  Amazing what a difference an E makes!

We are in our second day on the Neuro floor.  It's nice to be where there are enough chairs and away from so many singing, dinging monitors and flashing lights.  It has also been more than wonderful to be able to scoop up Zelie the minute we arrive and hold her and care for her ourselves.  It's also more of the same "wait and see" while on that crazy time they employ in the hospital where a 3:00 appointment happens at 9:00 and all times flex at least 30 minutes in any direction.

Presently, Miss Zelie is upstairs for that urodynamic study.  This will give us a accurate picture of how her bladder is working, or not working. As I've mentioned before, after the initial surgeries, bladder and kidney health are the most serious concerns accompanying her condition.  So far, the testing performed suggests that her bladder is doing well.  However, this new test will give a much more robust and definitive picture.

PT has also been by today.  They were pleased with her overall range of motion and lower body strength. We've been given stretches to work on with her to try to ensure even development across her lower body and to prevent problems with her joints as she grows.

Later this evening she will get to play in the MRI  machine.  While there has been only minimal increase in her head circumference, there seems to be some increase in the pressure in her head.  This is not a surprise, and our surgeon wants to stay on top of any developments.  Obviously there will be more to come on that front.

Several of you have asked about Joseph.  He's doing well.  The weekend was a little rough. What with Nana leaving and moving everything, it was a bit much for one little man to take.  But we are moved now and he is happy in the new apartment.  Uncle Ryan arrived today, so there are many adventures ahead.  And, now that mama is back with him and Daddy each evening, things are greatly improved.

That's all the news for today so far.  Thank you for all your continued love an support.  We would never have made it this far otherwise.